Parent/Teacher Conference

I met with Trin's teacher yesterday and realized an entirely new kind of hurdle.
When I first realized something was different with Triniti, I had no idea how I was going to survive being her mom. I didn't know what to do, I didn't know how to handle her. It was so frustrating for me as a mother to feel helpless.
I felt like I was the pilot of an airplane and it was spinning out of control and I had no idea how to right the course.
Luckily for me, I pushed hard and got a diagnosis and that felt like reaching out and grabbing the steering of the plane and as I read more and learned more I was able to gain control of the plane and have, for several months now, been in control of the plane. Sometimes there is turbulance but ususally we fly smoothly.
So when someone tells me that Trin is "fine", I have a tendency to get defensive.
They don't realize the amount of time and effort went into this "plane" flying smoothly nor do they realize the every day work that goes into it.
So when her therapist says that her AS is very "light" or her teacher says she doesn't see the need for additional modifications, it straight pisses me off. Because it feels like they are sitting inside the plane cruising along and I am in the front flying it.
I explained this to Trin's teacher last week and advised her to talk to Trin's teacher from last year and ask her about the hell we went through last year. I think she is starting to understand a little bit better the work that has went into and continues to go into keeping Trin on the right path.
It's just frustrating being alone in all of this.
Very frustrating.